Father's Desperate Plea: Daughter's Rare Disease Turns Her to Stone

Trujillo Police Officer's Desperate Plea for Daughter with Rare Ossification Disease A heartbreaking story unfolds in Trujillo, Peru, where Police Sub-Officer Victor Perez is fighting for his daughter Keyla's life. Keyla suffers from fibrodysplasia ossificans progressiva (FOP), a rare genetic disorder that causes soft tissues to turn into bone. The disease is slowly crippling Keyla, and doctors have given her a life expectancy of only around 30 years. "It's like she's turning into stone," Victor explains in a video interview. "My greatest fear is that the ossification will reach her lungs and she'll stop breathing." Victor has worked tirelessly to secure a transfer to Trujillo from Lima so he can be closer to Keyla and provide her with constant care. He has undergone extensive testing, including genetic tests that confirmed Keyla's diagnosis. However, the family faces significant financial challenges in accessing the specialized treatment Keyla desperately needs. Victor's determination to fight for his daughter is evident in his emotional video appeal, where he states, "I'm searching online, hoping to connect with doctors from other countries because I know Keyla isn't the only one." The video concludes with Victor's phone number, inviting viewers to offer support or information. This case highlights the challenges faced by families dealing with rare diseases and the importance of community support in overcoming such obstacles.